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I was never tested for epilepsy, etc. I too have FND, tics, PNES. Etc.
I think it’s barely understood.
I hope you’re handling things well
Hello and thank you for making this video!
I have a suggestion for you. Please don't think I'm not just have an open mind. Have you considered going to a hypnotherapist? If you can find a hypnotherapist, regress you back to help you fight while you're dealing with from the inside of your mind! In the mind is a very powerful thing! I believe if you can get in touch with your inner self, because believe it or not we all have one!! You will be able to reconnect with who and you are and how strong you are and fight from within! It's same thing works with past life regression!
I have recurrent sensations of passing out but I don’t actually pass out. A neurologist said it was no cause for alarm. Sometimes this happens 50 times a day. Does anyone else here have similar sensations?
Thank you so much for sharing this video. I have a history of petit mal epileptic seizures as a child and now non epileptic seizures. I really wish I could turn it off too lol. I don't have many now but when I was first diagnosed I had a lot going on in my life and I was having 30+ seizures a day, tremors in my hand, muscle spasms all over and the whole left side of my body went numb. I have never taken any meds for any symptom from it and I have yet to seek counseling. I grew up in an alcoholic dysfunctional home and so there was some abuse mentally there and witnessing things happening to my mother I think affected me as well. During that time I believe I learned how to process emotional pain the wrong way. I was diagnosed at 28 years old and I am now 49 years old. I wish there was a switch to turn it off lol. I want to say thank you from the bottom of my heart for making this video, for sharing your story and your heart. It means more than you know just to see other people out there with what I am struggling with and to not feel so alone. We as women shoulder so much all on our own.
Thank you❤
I just got diagnosed with PNES
Thank you so much. You dont even know how much this helped.
Thank goodness you did this video. I’m a health tech in a high school. I’m like the nurse but with no training!! A student had a few seizures. She was awake but not there. She wa so scared and pointing. I knew it was a different kind of seizure, but I didn’t know what. I called 911, but the dad came and said no she is having a pseudo seizure. My question is what do I do for her if she has another one? I saw one video that says like turn around and don’t focus on her. Do you have any advice?
Thank you so much for sharing I just got diagnosed with PNES
I was just diagnosed with pnes 1week ago your video was help helpful
Thanks for sharing. I have the same seizures and I was feeling I was alone for a long time. I have been to two hospital just this weekend because my seizure has changed on me. My mouth is turning to the side which has never happened before.
I was diagnosed with sudoseizures when I was 15 yrs old and still have them up to 5 a day cause of my past trama of being abused losing alone of my loved 1s
Impressive, truly. (My channel goes live July 26, 2021) I was also diagnosed with pnes and I have been in the fight for 4 years now. Last night I started working on my own channel with playlists. It's a bold statement but I may have some answers for you. There's a lot of information there and I'm trying to organize it so it will take some time but please stop by. I could use someone of your intelligence to point out my mistakes. At the very least I hope we can all heal together on this most arduous journey.
Hi I know what you're through I have seizures but I don't know if they epileptic or non. Now days I'm starting to have these sensations that feel like vibrations in my fresh. I don't know which is which
i had my first seizures back in 2015-16 when i was dealing with depression and a family divorce, i got it often but didn't last long.. From 2016 until 2020 i didn't get any seizures , just panic attacks when under a lot of stress. May of 2020 i had yet another seizure in front of my mother, a tonic seizure , i couldn't feel my body it was all stiff, i couldn't speak, couldn't open my eyes and i was shaking for almost 10 minutes. After my seizure finished , i paid my first visit to neurologist, had a EEG that showed that everything is fine with my brain and also ran some other further tests , eventually my neurologist said that i have an anxiety disorder and my seizure could be a cause of it. A year and a month later(2021) after having a huge fight with my boyfriend , i felt my body once again shutting down, i experienced another tonic seizure but this time even worst, i couldn't stop crying, hitting my self, had saliva coming out my mouth unstoppable , i couldn't speak or move my body the way i wanted, it felt like i was outside my body just observing , it lasted a good 20 minutes, i could feel that my bf was extremely worried as he was trying to comfort me and relax me. i felt i was going insane. i'm debating weither i should go once again and see a neurologist , but i'm pretty afraid they will say that there's nothing wrong with me besides my anxiety levels. I indeed feel that there's sth wrong with me, a day after the seizure i still had spasms all day long and numbness.
I really need your help, my Dad got diagnosed with PNES probably about 2 years ago. These events put the whole family in shock and confusion. Let say if i was your family what could i do to help???
I have pnes seizures
They come on their own but they are triggered
Like flashing lights etc.
Pnes is also common in people with ADHD and OCD
I have Tourette’s syndrome and ADHD plus OCD is common as a coexisting condition in Tourette syndrome
I got diagnosed with these on Friday. It’s rough. Mine are from a disorder called Dysautonomia. Mine are convulsions with paralysis due to high adrenaline from another disorder. They are so hard to treat. We are hoping that treating the disorder that causes it will treat them
I've been dealing with this for 14yrs due to childhood trauma. I was abused in many ways growing up and now I have BPD, CPTSD, Anxiety and depression, dissociation and phycogenic blackouts.
You are a strong woman and thank you for testimony
I just diagnosed with pnes in April 2021. Because I never dealt with seizures until February of 2021. I have a long way to go.
I know how it feels, it's okay to cry, in fact let it all out. Because we are here for you.